Help Everyone...

[Muscleguy40oz]

TweetWell I didnt know what forum to put this in so i hope i can get answers in here... Well i just met a girl a week ago and i really like her. She is such a sweet and beautiful girl... I was having a deep conversation with her and she told me that she has FSH Muscular Dystrophy which mainly effects her upper body... I knew something was wrong with her since she was really skinny and sort of limps when she walks. When ever i see her struggle to do simple things, i take for granted, like walk up stairs i have to hold my self back from crying...I just feel so sorry for her...Shes only 18 and such a beautiful girl...I have been reading up on some research on this disease and i am determined to do anything i can to help make her better... I have not found any research on trials using anabolic steroids to help patients with this disease.. I figure there would be some since they perscribe AS to patients with muscle wasting diseases like AIDS/HIV...There is nothing they can do about this disease, so i have read. I want to help and get her into some physical therapy to try and help strengthen her muscles.. The area that mostly bothers her is her lower back... Can anyone help to enlighten me more on the subject? My deepest gratitude!

[TheGame1976]

TweetSeek the help of a specialist. Most of us on this board are not doctors although some of us think we are I know a girl like this also; beautiful and really nice but the disease is very destructive.

[Muscleguy40oz]

TweetYeah she has gone to some specialist... She has a light case of the disease and she is expected to live a long life... I just wish there is something i could do to help her...

[TheGame1976]

TweetYeah, life sucks sometimes. I would provide emotional support but leave the physical therapy up to the doctors. They know what they are doing.

[Muscleguy40oz]

TweetYeah i totally understand what you are saying...

[trip]

TweetGood for you, what a great heart.

Write a letter to Dr. Raymond Scruggs of New Hope Living Center, he is an expert in this area.

Do a search on the the net, they are out in california.

Do not call him up, he is extremely busy and charges mucho bucks for his time. If you write a letter though with a self addressed stamped envelope almost can guarantee he will answer it with information you want at no charge, man has a heart of gold.

Good Luck

[LOCO]

Tweetdon't feel sorry for her.... that's least what they want to get from other ppl.. treat her like anyone else.. don't make her feel like she's different from others... it's gonna help her cope with it... and u too...

[Muscleguy40oz]

TweetYeah i treat her like i would any other girl, like a princess She gets along well with her disease, its just i cant stand the feeling of not being able to do anything... Well thanks for the response fellas.

[kwik20r]

TweetI think that you're doing the best thing for her that is within your power. You're treating her well... not like a pity case, but like a human being. Your friendship (or perhaps) more, being genuine, is probably precious to her. I feel for people with disabilities too... breaks my heart... makes one realize how much we really have going for us...