What are the causes of ulcerative colitis and what are the symptoms of a flare? Learn how to manage flares, how to reduce them, and when to see a doctor.
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What are the causes of ulcerative colitis and what are the symptoms of a flare? Learn how to manage flares, how to reduce them, and when to see a doctor.
More...
this is what they tell me i have. i dont buy it but i got the diagnosis on it after getting dysentery years ago
Great article Fuzo. hopefully you're right and don't have that guns
The article is very vague on triggers and causes. Anything acidic including orange juice, tomatoes, tomatoes sauce, anything spicy, dairy, anything greasy and do a low fiber diet. Basically he says meat and potatoes should be the mainstay of my diet.
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I have a very hard time reading about this subject. My daughter married a widower who took his wife on a honeymoon in Mexico, knowing she had this condition. She died 3 months later. Is there so much ignorance and so little science about this condition?
My doc has been spot on for me. I do still eat the things I'm not supposed to be definitely in moderation. I am on s drug called lialda, it's an anti inflammatory and it really helps. I went without it once for almost a year when I had shit insurance and the deductible was ridiculous and I had to pay full price for this medicine $687/month. I was in agony after a few months of not watching what I ate. Bloating, cramping, loss of appetite, and then the bleeding started. Luckily I have different insurance at work now and only pay $50/month for it.
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The bleeding accompanies super urgent and uncontrollable diarrhea(sorry for being graphic).
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Lialda is one of the handful of meds I take for Crohn's. Extremely expensive. $1,000's. At a rough time in life I turned to Shire the drug producer and they filled my script for free until I had insurance so I did not have to switch meds and mess things up inside. Crohn's Disease is one of my earliest memories of life. But I am still here kicking ass : )
they say mine isnt ulcerative and that i just have colitus. is yours ulcerative ce?Quote:
Originally Posted by chemicallyengineered
Yes ulcerativeQuote:
Originally Posted by guns01
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your triggers and issues are probably a lot different than mine are though. my big ass cant be far from the shitter when i pretty much eat anything bad haha. some things more than others but that's the biggest issue i have. the pain i can deal with but the running to the shitter 3 or 4 times after eating not so much.Quote:
Originally Posted by chemicallyengineered
Have you had a colonoscopy by a GI doctor?Quote:
Originally Posted by guns01
i have had the upper the lower and colonocopy all done man. they have ran a boat load of stupid tests on meQuote:
Originally Posted by DethKlok
The prep sucks the most. Colitis is still inflammation, not IBD, but inflammation nonetheless. i am concerned it has not been treated. Usually a short course of prednisone knocks it out.Quote:
Originally Posted by guns01
However, even after the inflammation has subsided you may still be left with these type of symptoms. Now you are in the world of IBS or Irritable Bowel Syndrome.
yep you got that right. they have tried and gave me a bunch of crap to try and help fix it. the bad thing for me is that even when i eat clean to prep i still get the same effect for the most part. if i am crapping solid it makes me think their is something bad wrong lol. i didnt have any issues at all until after the dysentery. since then my guts have been wrecked. only good thing that came out of it is a huge disability percentage from the va that put me at 100%. so at least they compensated me for itQuote:
Originally Posted by DethKlok
Sounds like IBS to me. Most folks can trace the onset to a certain trigger. I know a guy who took a whole box of exlax when he was kid and has been checked inside and out and he is fine physically, but his physiology changed and he has had IBS-D for decades now. Another guy i know it was salmonella as a teenager. Sounds like dysentery was your trigger. Just because your colon is technically healthy it does not mean IBS is very real and very life altering. IBS can be associated with diarrhea (IBS-D), constipation (IBS-C), and it can alternate (IBS-ALT). Every time you eat you stimulate your entire digestive system which for most folks with IBS-D triggers an episode. This is why it is encouraged more so for someone that is chronically constipated (IBS-C) to eat breakfast in order to wake up their digestive system and get it to break its rest cycle. There are medications available to help with symptoms of IBS because sometimes diet is not enough but it sounds like you have been there too. You said when your plumbing gets better you get concerned. It is funny because that is something only a person who suffers from IBS or IBD would understand.Quote:
Originally Posted by guns01
you should go work at the va dk. or even a normal practice. oh wait dont do that that would wreck my disability rating haha.Quote:
Originally Posted by DethKlok
i misspoke dk. they diagnosed me with chrons not colitus. still driven by inflammation nonetheless but i was thinking colitus and it was chronsQuote:
Originally Posted by DethKlok
I am sorry to hear that. Crohn's is a ***** goddess from hell. It really is a disease that is different from person to person and you know your Crohn's better than anyone. There are members here on FG that have Crohn's Disease and Ulcerative Colitis willing to help and give advice if you ever need any myself included brother.Quote:
Originally Posted by guns01
Goddess of inflammation is present. Sorry you guys have to go through this. Bad guts are a *****
that's a fact baby1 esp when you are a fat guy that loves all food. i dont think i have found many foods that i dont like, they just odnt like me very much haha. i will tell you that adding in the super bio curcummin and some of the other anti inflammatory supps to my lineup has helped a lot with the pain discomfort and bloat. then again i havent had any diary in over 3 months so i wont know completely for sure until i add a little back inQuote:
Originally Posted by BABY1
One of my regional managers has crohns and he gets remicaid? Infusions. I think that was the name. He said it makes a huge difference.
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Remicade is a biologic. Its 3 rounds of infusion that take 3 hours each (i think) at the hospital. there is a member here who does this treatment when he has a flare and that is all he does. There are other biologics like Humira shots available for taking at home. I have personally tried this one and it set my Crohn's off into something awful but for others its a miracle.Quote:
Originally Posted by chemicallyengineered